Here is quite a nice site written by a Meniere's patient - My Balance Disorder Cure.

There's alot of information here, from general information on the disease, diagnosis, different treatments, and what actually worked for this patient.  He is not a Doctor, just simply a Meniere's patient who has put together quite an extensive site to help others!

Looking for a little inspiration in your day?  Watch a music video of "One Way Jesus" which is an awesome song by Hillsong United just posted on Christ in Your Heart

Hope it brightens your day!

************************************************************************************

Just a side note, if you have a need for an inspirational, get well, or sympathy card to send to a loved one, you can get a free customized video to email.  You can customize your message, and even include your pictures.  Just go to:

 http://ciyh.net/VideoForMerry.html

We have also added Holiday Videos.  Thanksgiving is closer than you think!

http://ciyh.net/HolidayVideos.html

These are totally free, and once completed can be viewed on the website, or downloaded to your computer or disc.

Let us know what you think!

We have compiled a list of  clinical trials we have found involving tinnitus that are currently recruiting pariticpants as of August 23, 2008.  The list is diverse and involves many locations in the US and Europe.  You may wish to get in on one of these, but even if you can't, it is comforting to know that tinnitus research continues all over the World!

I'm sure there are many more research studies going on involving tinnitus and meniere's.  Please respond if you know of others.

Cost-Effectiveness of Multidisciplinary Management of Tinnitus (Netherlands)

http://clinicaltrials.gov/ct2/show/NCT00733044?recr=Open&cond="Tinnitus"&rank=2

Brain Imaging of Tinnitus (Maryland)

http://clinicaltrials.gov/ct2/show/NCT00359931?recr=Open&cond="Tinnitus"&rank=3


<< MORE >>

The Silverstein Institute in Florida announced that it has been found that using steroids in early cases of Meniere's disease may relieve the symptoms of hearing loss, pressure in the ear, ringing in the ear (tinnitus), and vertigo. High doses of Prednisone given by mouth for one to two weeks, works in 55% of cases. Perfusion of the inner ear with steroids (dexamethasone 4mg/cc) using the MicroWickTM for one month will improve the symptoms of Meniere's Disease. The patient instills the steroid drops into the ear three times a day for one month. The advantage of treating the ear directly is the medication gets into the inner ear in high concentrations and there is minimal effect on the entire body.

For more information about this treatment and other meniere's information, go to their website at http://earsinus.com/Home/tabid/54/Default.aspx

A miraculous thing happened to me.  I gave all the worry and fear about my illness to the Lord.  Then, while I was out worshiping Him and doing His work, he healed me!  Praise God!

Please visit our new inspirational Christian website, Christ in Your Heart.  You will find more healing through Jesus Christ than you have ever imagined possible! "And with His stripes we are healed!".

One of the first pieces of advice you will hear for Meniere's treatment is a salt-free diet. According to the American Heart Association, the average American eats 2,900 to 4,300 milligrams of sodium daily. That's much more than the 2,300 milligrams of sodium - the amount in one teaspoon of salt - recommended daily for healthy adults. Actually, one pickle contains about half the daily recommended sodium level. << MORE >>

 

It is very common for Meniere’s patients to have a prolonged period of attacks, and then have the problem eventually lessen or go away completely. In many cases, it is a mystery to the patient why this happens.

One Meniere’s patient had great success by keeping a journal of his daily activities and diet.  He then took note what had occurred in relation to his severe episodes. In doing so, he came to the surprising conclusion that his attacks had nothing to do with food, ...

<< MORE >>

As long as we are on the subject of famous Meniere’s patients, photographer Daniel Pancy has used his photography skills along with his personal experience of Meniere's to produce "Meniere’s:  A Photographic Journey in to the Daily Life of a Meniere’s Victim”.  This DVD is a remarkable slide show imitating what it is like for Meniere's Disease patients to have an attack. 

 

This DVD can be an excellent tool to use to show friends, family, co-workers, etc. how this disease actually affects it’s patients.  There is even a "white noise" sound track in the background to represent ringing in the ears (tinnitus).

 

Visit his website to read more about this remarkable DVD: http://www.shutterfreaks.com/Pancy-Menieres/index.htm

With more than 12 million novels in print, Frank Peretti is nothing short of a publishing phenomenon and has been called “America’s hottest Christian novelist.”  He also is now suffering from Meniere’s disease.  But this isn’t the first hardship he has had to endure!

Frank Peretti has always been a storyteller.  He used his mother’s old typewriter to write about monsters! “Frankenstein, Dracula, The Phantom of the Opera, the Mummy… I wrote stories about monsters,” he has said.

Why the fascination with monsters?  Actually, it came about because of his birth defect.  “It turned out I had cystic hygroma, which is a malformation of the lymphatic system,” he explains. “But the cystic hygroma spread into my tongue. So my tongue became a tumor in and of itself. It was big -- it stuck out far. It was black and bleeding. It was very hideous. They trimmed it back a lot, but it still protruded from my mouth. I learned how to talk with my tongue outside my mouth.”

At home, he was treated like everyone else, but then he had to start school. “That changed everything,” he says. “I found myself suddenly thrust into a culture that for some reason felt some moral obligation to make sure I knew I was different, that I was ugly, that I didn’t fit, that I was awful to look at, that I talked funny.”  Even after a final surgery which corrected his defect, he still endured years of bullying, and his only escape was his imagination.

From this well-developed imagination comes his latest book “House”, an epic supernatural thriller that gives new meaning to the phrase “haunted house”. 

You might be interested in his blog at http://www.frankperetti.com/gallery-119

You may also want to check out some of his many book and dvd selections: